Rare Disease Day is around the corner

The date is official and it is just around the corner – February 28th 2017. Start getting ready for Rare Disease Day! Last year Rare Genomics Institute (RG) participated in the celebration of the annual Rare Disease Day, and we will be a part of the global phenomenon once again in 2017.

This year is the tenth annual Rare Disease Day. And we at RG will of course be a part of this celebration and anniversary. On the last day of February patients world wide stand together and let their voices be heard.

Rare Disease Day has been growing and expanding since its beginning in 2008. Last year more than 80 countries and regions across the world participated in Rare Disease Day.

Rare Disease Day is an opportunity for RG, the rare disease community and of course patients worldwide to draw attention and awareness on rare diseases. Getting the public’s and the decision-maker’s attention is vital in the fight to find successful treatments and continue to cure rare diseases.

Your participation in Rare Disease Day by donation to RG will help thousands of patients lives. By contributing to Rare Disease Day February 28th you contribute to a brighter future for the patients. A future without rare diseases.

Therefore, we want to raise $5,000 by March 15th . Our goal to raise $5,000 will help patients one step closer to a diagnosis. Every donation counts and makes a difference for people living with or being affected by rare diseases.

Join us in celebrating the tenth annual Rare Disease Day on the last day of February, and help making a change and bring back hope for people affected with rare diseases.

By donating, you'll be joining our community of researchers, doctors, business leaders, and families to bring back hope to patients with rare diseases. 

Thank you!

The Rare Genomics Institute Team (RG)

Contact Rare Genomics Institute 

Email: contact@raregenomics.org
8504 Firestone Blvd. #198, Downey CA 90241

Rare Genomics Institute is a 501(c)(3) charitable non-profit organization.  Donations to our organization are tax deductible and made with the understanding that Rare Genomics Institute has ultimate discretion and control over the use of donated funds.  All donations, even those made to specific crowdfunding campaigns, are intended for Rare Genomics Institute, not any specific individual or cause.  Donations to specific crowdfunding campaigns are considered spending recommendations, and while Rare Genomics Institute will make good faith efforts to effectuate each donor’s preference to support an individual or cause, per IRS rules on tax deductibility, Rare Genomics Institute has complete discretion and control over the use of all such donations.


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